Where Love meets Alzheimer's in "FEEDING MY MOTHER" by Jann Arden

 

Another year, another page.

a million moments melt away.

The ticking-tocking hands of time,

what’s found and lost, remains sublime.

The details that we hold so fast,

are nothing more than memories past.

For love is all that lingers true,

the bond that ties my heart to you.

—JANN ARDEN, DECEMBER 29, 2013

These days, I am doing more puzzling and less reading and writing.  There is one big reason for that.  The jigsaw puzzles that I have been doing are beautiful and lack a conflicting presence in my life.  Most of the books I've been reading in the last few years have been great for me, but are turning the rest of my world upside down.  I can share the pictures of my jigsaw puzzles with my family but sharing my literary discoveries.. well... that is a different story.  

"Gratitude is a way to belong to the universe, a way to attach yourself to everything that ever existed. When grace and thanks and mercy fill your days, you can survive all hardship. You can conquer any wrongs, and you can help others to do the same. Gratitude is my cape, my superhero “must-have” to get me through life. Gratitude helps me to understand my parents and my shortcomings and my failures and my triumphs.

It has changed who I am and how I react to things. Without this magical energy in my life, I feel lost. There have been times when I didn’t understand how much I took things for granted, and my whole being felt the effects of that negativity. I do not want to walk into the sunset anymore, I want to run into the sunrise. " JA

Jann Arden's book is a story I can talk about with my family.  My husband remembers running sound for Jann back in Calgary before "Insensitive" hit the airwaves.  But it wasn't her music that drew me to her story... it was her journey with her parents and their Dementia that had me downloading this book after I thought I had given up on reading.  

Mom started laughing when I asked her why she was saving all this crap. She said, “I just need it and I don’t know why. So there. You can burn it all when I die.” JA

I think what I loved most about the book were two things.  Jann's conversations with her mom and her wisdom that came out of those interactions.  From the looks of this last quote... it seems like we have very similar mothers.  

 Lift others up when you can, even if you don’t agree with what they have to say. Don’t always turn your words into weapons when you can just as easily make them doves.  JA

Jann's book is a perfect mix of wit and wisdom.  Those reads are hard to find.  I think I want to spend less time talking about what I got out of the book... and just share those wise words from Jann herself.  Because there were so many.  

It’s okay to feel sadness. I don’t mind it lingering there like smoke. It serves as a reminder that I am able to feel things and be present in my own life, a participant rather than an observer. Life isn’t a beer commercial. You can’t run down a sunlit beach every day. If you ask me, that would become tedious. Obstacles and challenges simply make you stronger and smarter and more authentic.

And my sadness is not depression. I’m not depressed, I’m sad. Two very different things. I know why I’m sad. It isn’t a mystery. I don’t want or need a pill or a drink or a salve or some sort of magic tonic to make it go away. I am quite happy to feel sad. JA

A woman after my own heart.  

What I’ve come to understand, through a great deal of my own anguish and heartache and sadness, is that memories DO NOT define our souls. Our souls—my mother’s soul, and all the souls who are bombarded with memory loss—are intact.

I’ve been trying, but I can’t begin to tell you what I have learned about myself and my mom during this unfortunate but, in its way, glorious journey. I knew my mom was strong and resilient but I had no idea how strong, how resilient. She said to me once, after one of my rants where I tried to be the memory police a few years ago, that a person didn’t have to remember everything in order to be happy. That, as you can imagine, kind of blew my mind for the following several weeks.

“You don’t have to remember everything to be happy.”  JA

I think the greatest lesson I learned from Jann's story is about the memory police.  Why do we have to be the memory police?    Do I really have to correct another person just because I think they have their facts wrong?  Alzheimer's intensifies fantasies, but fantasies are a part of every day life for most people.  And one person's fantasy is another person's reality.  So why do I need to infringe my reality into what I perceive as another person's fantasy, which they only see as their reality.  This has been a great lesson for me and one I hope I can implement in my own life more.  Thanks Jann!

We shouldn’t judge a human life by how it ends, and we so often do. How we die has nothing to do with how we lived. I think I’ve been confusing these two things. I’ve been making her whole life about these past few years and that’s not where the truth lies. JA

Oh boy... it just kept getting better and better.  

I believe with all my heart that love permeates Alzheimer’s. It gets through even though you think it’s not getting through. It’s like a shard of light that even a blind person can see. Love will surprise you at every turn. JA

My Oma forgot my name in the last couple years of her life, but she never forgot that she loved me.  Alzheimer's and Dementia take the brain, but they have no access to the love.  I have seen love and fear manifested in patients with Dementia... I wonder if it a choice.  If we can pour love into our lives and into the lives of others... that has to be the best way to navigate the Alzheimer's journey.  The memories will be lost... but we can do everything to see that the Love remains.  Because... Love drives out Fear!

Thank you Jann for sharing your story and being vulnerable in the process.  If this is the last book I ever read, it will be a crowning jewel in my library.  

And because I am posting this on the first Sunday of Advent... Jann's greeting seems an appropriate send off...

MERRY CHRISTMAS, HAPPY HANUKKAH!

Whatever your beliefs be, I hope goodness is at the heart of them all. JA